• Medical
  • Kevin’s Freedom Fund

    We are asking for donations to assist Kevin Barton in supplementing his home health and nursing care as well as preserve his quality of life. Tennessee State Medicaid al...

    109 Backers 0 Love it
  • $13,530 Raised
    $50,000 Goal
    Updating Date Formats in background. Click here to run now Days to Go

UPDATE 8/01/18:

We would like to thank everyone for their generous donations over this last years in support of Kevin's health and independence. Those donations have allowed Kevin to keep living independently while ensuring his good health by securing necessary caregivers during the Insurance initiated reduction of his nursing care. After months of appointments with case workers, insurers, the state, doctors, lawyers, etc. Kevin was able to receive state funding through a program called CHOICES to assist with around-the-clock caregivers. However, the program eliminated almost all of care he receives from a licensed nurse. His primary nurse, LPN, of 15 years has chosen to stay working with Kevin despite having her nursing hours and rate of pay drastically reduced. She continues to work above and beyond with excellent nursing care for the benefit of Kevin's well-being on a monthly stipend we created from the funds we've raised here. She continues to fill in for shifts that undoubtedly would be uncovered had she not. In fact, Kevin believes most of this transition would not have been possible if not for her being the "glue" and the support that is holding everything together including his physical health because she has worked with him for so long that she is an expert in his unique physical condition.

We have enough funding to cover this very necessary nursing expense through September. It is our hope, as family and friends, to continue raising funds which will help ensure Kevin's desire to live independently and to have the best quality of life possible. Funds will continue to be used for any of Kevin's major needs or expenses not covered by insurance including supplementing the expenses related to keeping his licensed nurse of 15 years.

Thank you for your time & consideration.

We are asking for donations to assist Kevin Barton in supplementing his home health and nursing care as well as preserve his quality of life.

Tennessee State Medicaid along with its MCO, Amerigroup, has drastically reduced the amount of hours they will provide in his home health care. Without being able to supplement this care with additional care, he will not be able to continue living independently in his own home like he has been doing for the last 22 years.

Kevin was diagnosed shortly after birth with a form of Muscular Dystrophy called, Spinal Muscular Atrophy. It is a genetic disease that affects the motor nerve cells in the spinal cord and causes progressive weakness of the muscles. Medically, Kevin’s life expectancy was less than a few years.

Kevin has never been able to walk and has required total assistance his entire life. Throughout childhood and young adulthood he had some strength in his arms that he no longer has today at the age of 40. For instance, there was a time when he could feed himself, turn pages of a book and hold a phone to his ear. Due to the progressive deterioration of his muscles he can no longer do any of those things. He has very limited movement of his right hand which allows him to drive his power wheelchair. He also continues to have full mental capacity and communication skills and abilities.

Despite his disability, Kevin has been able to earn a Master's Degree in counseling, work in the counseling field for several years, advocate for people with disabilities, work as a songwriter in Nashville, Tennessee and do some motivational/inspirational speaking. He has been able to live such a full life because of the one-on-one care the state Medicaid's used to provide which is now being drastically reduced.

Very little options are being given to Kevin to be able to keep living independently in his home (which he owns) and to maintain his health and quality of life. Services offered through Tennessee Medicaid waivers are very limited as to the hours he could receive for one-on-one assistance. Since the age of 18, Kevin has lived on his own and doesn’t have any family that can “pick up the slack” and fill the gaps that Tennessee Medicaid will no longer cover. Kevin says that his fight is to be able to continue living independently on his terms in his home. He expresses that the extraordinary quality of life he has been able to live thus far is a direct correlation to the level of care (one-on-one 24/7) he has been able to receive. That has equaled his freedom and what he would like to believe is his American right to life, liberty, and pursuit of happiness.



    1. Billy

      God bless you brother hope that helps wish I had more to give! Things need to change on this issue. Love you man!

      Billy D

    2. Corey

      Do you still have that Latin Video we made? I should be more clear….,, Latin Class video

    3. Suzanne

      Kevin, we met you when you were a baby. Say hi to your Mom for us.
      Bill and Sue Crane, Norfolk, MA

    Leave a Reply

    NameDonation AmountDate
    Print receipt
    Print receipt
    Print receipt
    Print receipt
    Print receipt
    Print receipt
    Print receipt
    Print receipt
    Print receipt
    Print receipt

    Project FAQ

    Share this campaign

    Help raise awareness for this campaign by sharing this widget. Simply paste the following HTML code most places on the web.

    Embed Code

    <iframe src="https://directlyto.org/?ig_embed_widget=1&product_no=62" width="214" height="366" frameborder="0" scrolling="no" /></iframe>

    About the Author

    Kevin's Freedom Trust
    Created 1 Project
    Step 1: Specify your contribution amount for DirectlyTo: General Donation